When the two young women from the CCAC (Community Care Access Centre) appeared at my bedside the morning I was being discharged from the hospital I could tell they really wanted to help. The senior of the two was reading my chart as she introduced me to the woman she was training. They both smiled implausibly brightly.
"Sooo..." she said, as she squinted at the nursing notes. "You had an ileostomy before, so you're OK to manage that? But you need wound care?"
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On Friday I wrote about my personal and political experiences as a patient activist and my take on the new patient ombudsman position to which Christine Elliot has been appointed. I have a lot more to say about many aspects of this appointment and its implications.
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There are many tangled threads and competing demands in the life of a patient activist. Within your body, your ethics, your politics. It's a murky cauldron at the best of times.
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